Archive for the ‘Parenting’ Category

18
Jul

A note on dyslexia

   Posted by: Sandi Tags:

I spend a lot of time, here, discussing autism. That’s because I have an autistic son.

I have not spent a lot of time discussing dyslexia.  Which is odd because Cyclone, my older son, is dyslexic.  As is my husband. As is my dad.  As is my sister.

I have been virtually surrounded by dyslexic people.  My mother was a vision therapist before she retired, unsurprisingly, so I learned quite a bit about this.

Dyslexia is most often passed from father to son.  If the father has it, there is a fairly high chance that a son of his will have dyslexia as well. (The percentages for passing it along to a daughter are lower, but as my family is evidence, it can happen.)

The very best thing one can do as a parent of a possibly dyslexic child is to begin “vision therapy” at birth.  No, I am not advocating anything extreme, honest. :)  I began with the basics, myself.

Pattern the brain with lefts and rights, using the child’s own body as a map.

When bathing the baby, whenever you hold their limbs to wash them, you simply tell them which limb it is. “Now we’re washing the right arm. Now we’re washing the left leg.” You can continue it, if you wish. “This is the right ear. This is the left ear.” And so on.

Do this when dressing the baby, when changing their diapers, when feeding them…in as many interactions as possible in that first year.  This way, the child will associate his body with proper right and left patterns, and these patterns will be hardwired into his brain.

Even if the child is NOT dyslexic, this is a GOOD THING. Everyone should know their rights and lefts. :)

I’ll add more to this tag in the future.  Can’t imagine why I hadn’t done it before.

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24
May

Coming in June…

   Posted by: Sandi

The gentle increase of light in the sky is a sign of upcoming changes.  A yellow light on a traffic signal is a warning – however brief in duration – about change.  I watch the website at NOAA and keep an eye on the weather to have a heads-up on possible future changes.

I like to be warned about changes; most of us do.

For Builder (who is currently designing and decorating a house in Google Sketch-up), we have to sign-post changes for him.  Preparing him for transitions is even in his IEP (Individualized Education Program) — essentially, anyone teaching him has to prepare him for a transition. There can be no surprises.

I don’t like surprises myself, so this is all good with me.

When we knew we had to alter his sleep schedule, we informed him and we are sliding him into a new routine gradually.  Since he and the calendar are good friends, we are starting a few new things in June.

1. He will not wake me up until five in the morning.  He is often awake at four, but he is to stay in bed and read or draw on his Magna-doodle or something until five.

2. He will take his morning meds with apple juice.  He has learned to swallow pills whole, which is wonderful. To facilitate this new skill, I let him choose what beverage he could use to take his meds.  He chose Sprite.  I have allowed it to allow him some say in taking his meds as the procedure was new to him.  Now, we’re changing the beverage to apple juice.  It matters to me, anyway…

3. A visit to the grandparents’ is planned in June.  So he has been prepped, we have looked at the driving route (again) and we have gone over all that he will see and do at his grandparents’ house.  He has reviewed every picture we have of the houses, their appliances, and so on. He has spoken much more than usual to his grandma.  He is preparing himself for the visit.  We talk about the drive up and back and the possibility of sightseeing.

These are just some of the changes coming. In June.  After he’s been prepared for them.

We can’t transition when there’s a power outage. We can’t prepare for sudden rain storms.  But for some things, we can and we do.

Hopefully, we will have a more peaceful summer. :)

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18
May

An Eeyore Day

   Posted by: Sandi Tags: , , ,

Boys are boys.

God made boys to be different from girls and I’m pleased about this.  This is not a sexist post, just a post of some observations I have made in the past 35 years of studying young people and the raising thereof.

Boys make weapons.  You can “ban guns” from the playroom, but the average boy will make them anyway. Even if it’s with the Wonder Bread you let them have.  They will squish it into the basic shape of a revolver and use it to shoot their table mates. Sometimes with tiny bread pellets.  Girls make guns too, but they usually require incentive.

Boys have a pre-puberty thing I call Turning Into an Alien.  (Girls turn into drama queens around age ten and may stay there for a decade.)  This usually begins, in the average boy, around the age of eight.  The sweet little guy his parents know and love can morph into an alien seemingly over night.  All of a sudden, they’re acting belligerent, defiant, fiercely opinionated and sometimes just mean.  This phase in young masculinity generally lasts until the boy is fifteen or sixteen.  It probably has to do with a gradual build up of testosterone or something, but I’m not a doctor so cannot tell you the cause. Only the observed behavior.

When my brother was eight, he morphed. When my elder son, Cyclone, was about eight, he morphed for a time.  (He’s getting better now.)  And Builder is now eight and he’s doing this standard thing that boys often just DO at his age.

But he’s autistic. So while he’s doing this, he’s also still thinking we’re lying to him because he thinks we are all part of the Borg Brain.  He’s thinking that he needs to tear down the world and start over.  He is not really able to translate the communication systems of the world to his own and vice versa.

And while he’s doing this, he’s telling his teacher that he worries when bad days happen. He thinks they’ll never end. This stuff is prompted by something so mundane and routine as Dad leaving for work or Mom going to the movies.  We do our best to alleviate his distress, but we aren’t always successful.

And sometimes…he just WANTS to be angry.  We still haven’t found out what need of his is served by this, but we see the psychiatrist again next month and we’ll try to talk about it then.

Honestly, I’m tired.  Tired from the exhausting demands on my psyche every day.  Trying to filter out what is “autism” and what is “belligerent boy who needs to get a grip.” Some things, I make allowances for. Other things need to be corrected.  Five months, he’s been home.  Every day I am on duty, often from half past four in the morning on.  I am up and on duty and answering questions, handling issues, juggling therapists’ appointments and medical tests and domestic concerns.

There are two other guys in my house, after all, who deserve a wife and mom who has time for THEM, too.  So I pore over Cyclone’s yearbook and check his papers for Honors English.  I discuss his books with him when I can.  I listen to his enthusiasms…when I can. ;-)  I remember his favorite meals and make sure he gets them at least twice a week.  I allow him the luxury of privacy when he requires it.  It is the best I can do, sometimes.

For my husband, I handle talking to the Air Conditioner Guy and the Electrical Guy and make sure he has his lunch every morning and his laundry ready for work and his home cared for so that he doesn’t have to think about it.  I see to the yard work so he isn’t responsible for mowing the yards on top of the work he does on a daily basis without complaint.

These are just the basics and I do love my life.

I am thankful that God in his Heaven gave me tools with which to manage all of this while operating on five interrupted hours of sleep a night.  He has given me grace to allow people in my house all the time when I really get stressed over that. I mean… REALLY.  My Lord and God gives me oomph when I need it, a way to laugh when I’m so far flatlined that I can’t even smile on my own. He uses his people to send me things in the mail that make my day.  He gives me children with sense of humor and a husband who enjoys me no matter who I happen to be on any given day.

So though I AM tired and I DO wish I could send Builder back to school so I could have my time to myself to focus on my novels again…

I figure I have what I need. And I’m thankful.  Someday, maybe I’ll get what I want, too.

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